Since my last post Breckin's seizure's continue. Less frequently though, we're now at about once a week. Better, but not great. We're still playing with the medicine and trying to figure out what's going on.
Breckin had another MRI last Wednesday. This time it's not only his brain but also his spine. We're hoping to find out why his walking has regressed. It was 3 hours so quite a long one but Breckin did great, of course they put him under so that he won't move around. My brother and his wife brought us coffee which helped pass the time.
In other news I decorated for Halloween today. Later than normal but i'm really happy. I just need to find a Halloween wreath for the front door.
Before and after the MRI.
And now some cute pictures just because I can't help myself.
Seizures suck big donkey balls. Breckin has had 5 in the past couple of weeks and it’s killing us. We switched his medicines and it’s clear this new one isn’t working. Which means we have to switch again.
It's horrible to not having control of this in anyway. And it sucks to start to feel good like this medicine will work and then boom. Seizure.
Whe Breckin has a seizure he's out of it for the rest of the day and can’t attend school or therapy or do fun things we had planned.
Not to mention the emotional toll they take on Joe and I having to try to navigate all of this and manage work at the same time. And living with a crazy level of stress wondering when the next one will happen and if the Valium that we shoot in his butt to stop the seizure will one day stop working too is just sucky.
I just want them to stop.
So Breckin, if you read this please stop your brain from freaking out. I’ll give you a cookie.
Ps: This isn't a cry for help. Joe and I are doing fine. We are stressed but I think that's normal for parents. We have a great support system.
We appreciate all the love and prayers people send to Breckin and us.
Pps: This could be a cry for help if the help you are sending is wine.
Oh my Breckin..you are 4 today. I can’t believe 4 years ago
you came into our lives at exactly 3:55 pm. It seems like so long ago but also just yesterday.
You are so much fun to be with. You love to laugh and to make other people laugh. You’re so affectionate. You give the best hugs and kisses.
You’re such a tough cookie. You’ve gone through so much in
your 4 years and yet you manage to just march on and smile. There’s a lot that adults could learn a lot from you.
I love to see the different ways you’re developing. Your
much more vocal now when you want to do something and I’m not letting you. Sometimes
you like to yell just for fun. And sometimes you like push Mommy and Daddy’s
buttons for a good time.
Trying to play in the dirt from the house plant.
Even still, You are our pride and joy!
You're growing so fast. I know i'm going to miss the days when i could carry you around. But no matter what you'll always be my little pumpkin face!
Can it already be the middle of March? Time really flies
as you get older. Totally how I feel right now:
He discovered his tongue!
Breckin has been in school for 6 months. He seems to really
love it. Even though he’s exhausted afterward.
He’s come home with one piece of artwork a month usually
including a paint print of his foot.
It's really cute and has stopped making me cry...don't ask..I just love his little hands and feet.
Breckin has grown quite adept with his walker. He’s learned
how to turn it and now tries to take it up and down stairs and over objects.
Which in turn causes my blood pressure to jump.
His therapist recently showed us how to unlock the wheels. Which makes Breckin go around in a circle when is tired. But will be great for him once he's figured out how to to use it. It will give him greater control and allow him navigate tight spaces easily. Also, hopefully it will force him to use more of his own muscles and get him to start trusting himself to walk independently. Which would be great for us too since he's getting tall and heavy.
Breck still isn't talking. He's making sounds and is showing greater range of emotions. Squealing when happy and really hamming it up when he's sad or in trouble. It's pretty cute. As seen here.
Hopefully he'll catch on to some words soon. I really want to hear him say mama.